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nyykiMurphy's Military Law #1: No battle plan survives contact with the enemy.
"Everybody has a plan until they get punched in the face." Mike Tyson
So, the plan seemed sound. A biologics infusion appointment at 11am, and an open appointment slot for a breathing treatment to help my immune system at 9am. The infusion center right up the service road from the hospital, so the logistics worked well enough. But...
1. a light flashing on Northwest Highway cause a rush hour backup that ate about 20 minutes.
2. The directions sheet had the wrong room number and didn't include anything about having to go to registration to sign in.
3. We got down to registration and the person we talked to told us to take a seat and she'd be with us to get my paperwork filled out. She forgot we were there.
So when we got all that dealt with and up to the right room we were told it'd be at least 45 minutes before they could get me in, and it was after 10:30am. We had to punt, and I was lucky the guy there told me I could come back after my other appointment. So it worked out. But it was a lot of uncertainty and stress. And they were going to charge me about $250 for the breathing treatment until I pointed out I'd had a transplant and my out of pocket was more than covered by now. She checked and realized I was right
I weighed in at 201 even, so I'm 4.4 lbs. up thanks to the water. That's about half a gallon or two liters to be more precise. So I know what I'm holding in for now. But I've met my water goals two days in a row, and I'm on the way to doing it today too.
There's a classic country song by Tom T. Hall called "One Piece At A Time" about him working at a Cadillac factory and smuggling out individual parts to build himself his own car, and how he did this over a few decades so he had a crazy hybrid car. From what I've been told that's the reality of a transplant recipient too -- lots of moving parts, all of which work in atypical ways because of the other either factory or aftermarket parts that weren't designed for that model. That's why it's all a matter of constant adjustment for the first year, with more intensive adjustments for the first three months. I hit the three month mark on the 13th, but that's not hard and fast. So the statement about us all being works in process is up front and in my face. I'm not complaining -- though it can be a bit frustrating at times, it's also fascinating because I was one of those kids that took things apart to figure out how they worked.
Nyyki (She/Miss)
"Everybody has a plan until they get punched in the face." Mike Tyson
So, the plan seemed sound. A biologics infusion appointment at 11am, and an open appointment slot for a breathing treatment to help my immune system at 9am. The infusion center right up the service road from the hospital, so the logistics worked well enough. But...
1. a light flashing on Northwest Highway cause a rush hour backup that ate about 20 minutes.
2. The directions sheet had the wrong room number and didn't include anything about having to go to registration to sign in.
3. We got down to registration and the person we talked to told us to take a seat and she'd be with us to get my paperwork filled out. She forgot we were there.
So when we got all that dealt with and up to the right room we were told it'd be at least 45 minutes before they could get me in, and it was after 10:30am. We had to punt, and I was lucky the guy there told me I could come back after my other appointment. So it worked out. But it was a lot of uncertainty and stress. And they were going to charge me about $250 for the breathing treatment until I pointed out I'd had a transplant and my out of pocket was more than covered by now. She checked and realized I was right
I weighed in at 201 even, so I'm 4.4 lbs. up thanks to the water. That's about half a gallon or two liters to be more precise. So I know what I'm holding in for now. But I've met my water goals two days in a row, and I'm on the way to doing it today too.
There's a classic country song by Tom T. Hall called "One Piece At A Time" about him working at a Cadillac factory and smuggling out individual parts to build himself his own car, and how he did this over a few decades so he had a crazy hybrid car. From what I've been told that's the reality of a transplant recipient too -- lots of moving parts, all of which work in atypical ways because of the other either factory or aftermarket parts that weren't designed for that model. That's why it's all a matter of constant adjustment for the first year, with more intensive adjustments for the first three months. I hit the three month mark on the 13th, but that's not hard and fast. So the statement about us all being works in process is up front and in my face. I'm not complaining -- though it can be a bit frustrating at times, it's also fascinating because I was one of those kids that took things apart to figure out how they worked.
Nyyki (She/Miss)
