Medical Post 7/8/21
Jul. 8th, 2021 02:57 pm![[personal profile]](https://www.dreamwidth.org/img/silk/identity/user.png){kind=small}
nyykiWell. It seems the flood nyyki with water system has borne fruit. Creatinine: 1.1
A1C: 5.8
Everything else came out in the normal range. We're going to schedule a surgical session to tie off this dialysis access so my left arm is usable for blood pressure and sticks again, and it won't have fluid issues that make it swell up. I'm now down to clinic visits every two weeks. We've got things in place so I can start emailing in my weekly weigh-in, twice daily temp and Blood Pressure, and thrice daily blood stick.
He was amazed. He told me that of the folks he's transplanted this year mine was the one that has the most delicate taste for processes, but we're getting a handle on it. The electrolytes are fine too, so no need to supplement things with sugar free sports drinks. (though I might do so for some variety from time to time)
I got to ask him a lot of questions, including the big one. Either today or tomorrow I'll call the transgender support center to start the dialogue about when we can get me in to do top and bottom surgery this year. I know it's a bit more of a set of hoops dealing with medicare, so I want to get that moving as soon as possible. I also want to get to the courthouse to file for a formal name change and jettison my dead name for once and for all.
This was a very important meeting with a chain of good results. And it opens up things for more to come.
When I met with the transplant center's chief nephrologist back in 2019 he asked me about my transition and if that was going to affect getting a transplant. I told him, "Here in Texas we deal with the venomous snakes before we worry about the cactus." I had to of course explain that End Stage Kidney Disease can kill someone just like snake venom can, while gender stuff is something to try not to bump up against. Well, we dealt with the snakes starting on April 13, and we 've got them restrained, so it's time to move on to the cactus. And I'll keep y'all updated on how things go in clearing that field for future cultivation.
Nyyki (she/her/Miss)
A1C: 5.8
Everything else came out in the normal range. We're going to schedule a surgical session to tie off this dialysis access so my left arm is usable for blood pressure and sticks again, and it won't have fluid issues that make it swell up. I'm now down to clinic visits every two weeks. We've got things in place so I can start emailing in my weekly weigh-in, twice daily temp and Blood Pressure, and thrice daily blood stick.
He was amazed. He told me that of the folks he's transplanted this year mine was the one that has the most delicate taste for processes, but we're getting a handle on it. The electrolytes are fine too, so no need to supplement things with sugar free sports drinks. (though I might do so for some variety from time to time)
I got to ask him a lot of questions, including the big one. Either today or tomorrow I'll call the transgender support center to start the dialogue about when we can get me in to do top and bottom surgery this year. I know it's a bit more of a set of hoops dealing with medicare, so I want to get that moving as soon as possible. I also want to get to the courthouse to file for a formal name change and jettison my dead name for once and for all.
This was a very important meeting with a chain of good results. And it opens up things for more to come.
When I met with the transplant center's chief nephrologist back in 2019 he asked me about my transition and if that was going to affect getting a transplant. I told him, "Here in Texas we deal with the venomous snakes before we worry about the cactus." I had to of course explain that End Stage Kidney Disease can kill someone just like snake venom can, while gender stuff is something to try not to bump up against. Well, we dealt with the snakes starting on April 13, and we 've got them restrained, so it's time to move on to the cactus. And I'll keep y'all updated on how things go in clearing that field for future cultivation.
Nyyki (she/her/Miss)
no subject
Date: 2021-07-09 04:42 pm (UTC)no subject
Date: 2021-07-09 05:22 pm (UTC)When he described me as "delicate" and "sensitive" and explained he was talking about how my body reacted, I thought of how you'd react and felt pity for your computer monitor.
He said he doesn't have another patient in the clinic right now (and they do 180 a year, with a total number of patients at around a thousand) who had what I went through with the medications -- with the exception of prednisone I've had a reaction to every single med and we've had to dance around a lot to get it to jigsaw together in ways it'll work. And he also said that what made this work was that I'm so compliant with medical recommendations, otherwise there'd have been a lot worse problems. Perhaps I get it in a way a lot of people don't thanks to my prior brushes with often life ending medical conditions; I take my health seriously and do all I can to work with the doctors. I also won't leave out how regular wellness visits to my PCP have gotten me into the habit of watching my health.
Nyyki (she/her/Miss)
Sent from my HAL 9000 in transit to Jupiter